It all started with a urinary tract infection. The urine analysis came back positive for bacteria, the doctor prescribed an antibiotic, and Becca’s follow-up appointment was scheduled for Tuesday, August 28. Tuesday I was planning on a quick in-and-out appointment with Dr. Raine. Come to find out that UTI’s are not so simple anymore. UTI’s can be a sign of vesicoureteral (VU) reflux…which usually doesn’t show up until later but causes problems in adulthood. So to be safe rather than sorry, Dr. Raine sent Becca to Radiology the next morning to have a kidney ultrasound and a cystourethrogram. Dr. Raine said he’s “old fashion” and likes to check everything out. Sounds like a lot of doctors only order the tests if the child has reoccurring UTI’s.
Wednesday morning (August 29) I took Becca in for a ultrasound of her kidneys and the other terrible test where they inserted a catheter and filled her bladder up with fluid and then took x-rays while she urinated. She did pretty well until the end and then she was screaming “GET ME OUT OF THIS PLACE!” You can see from the picture on the right that she was not very happy after that test. The picture on the left show how unhappy she was when we started our drive to the test — since she had to fast. Fortunately, she forgot about that part as soon as we started driving and was a very happy girl until the testing started.
I noticed during the ultrasound that the tech took a lot of pictures of her right kidney…it seemed strange. Then it seemed really strange when he only took a few of her left kidney and went back and took more of her right kidney. When we got home I told Josh that I thought something was wrong. About 30 minutes after Becca and I got home from the tests, our doctor’s office called and asked for one of us to come in right away talk with the doctor. Josh went. You know it’s not good news when the doctor’s office calls right after testing and asks to see you. Josh came home and told me that they had found a mass and that it could be cancer – shock! I don’t think I’ll ever forget the look on Josh’s face when he came home and told me the news.
Thursday morning (August 30) I took Becca to Cook Children’s hospital for an MRI. They put her to sleep, which was nice for her. It’s a terrible thing to walk away and leave your child in a room where she’s just “fallen to sleep” and you know they’re going to do an MRI. She had a rough time waking up – pretty grumpy — but after that did great.
They told us we would hear the results in 2 days, which with the holiday weekend could mean Tuesday. I was looking forward to a day without a medical appointment and decided it would be nice to have a few days before we heard the results. However, that night the oncologist’s office called and set up a Friday morning appointment with us. Becca’s pediatrician also personally called Thursday evening to tell us that the tumor is probably cancer . . . but that things were looking good. Shock.
Friday morning we met with the oncologist. She confirmed that the tumor is almost certainly a type of cancer called neuroblastoma; her assessment was based on how the mass appears in the images (and it turns out she’s a specialist in neuroblastoma!). She strongly suspects that the cancer hasn’t spread, and it doesn’t show the characteristics of the more aggressive types of neuroblastoma. If this is the case, after the surgery to remove the tumor, there will be no need for further treatment — just observation. She then made an appointment for us to see the surgeon that afternoon.
At 3:30 we met with the pediatric surgeon who will remove the tumor. He said that it has a clean profile, does not appear to have gone into the kidney, and will likely come out easily. He will attempt to remove it with laparoscopic surgery. If he can’t do that, he’ll simply make a larger incision and complete the surgery that way. The surgery is scheduled for next Friday, September 14th. If the surgery is done laparoscopically, Becca will only need a night or two in the hospital for recovery. If a larger incision is required, recovery might take an extra couple days. After surgery the tumor will be sent for analysis; a major part of this will be genetic analysis of the neuroblastoma (to confirm that it doesn’t fall into a subtype that is particularly hard to cure — but presently there is not indication that it is this type).
Today Becca goes in for a shot to prepare her for additional testing tomorrow. Tomorrow (Friday, Sept 7th) Becca goes in for a CT scan and an mIBG scan. She will be asleep for both.
It’s all gone so fast. Monday was a normal day…and now we’re dealing with this. How fast things can change. It doesn’t seem real…I keep telling myself “my daughter has a tumor and they’re calling it cancer. How can this be? Look at her – she’s the picture of health and high energy!!”
We’re so thankful for many things…the UTI (which had nothing to do with the tumor!)…our careful doctor…the location of the children’s hospital – about a 20-minute drive…the team of doctors…the speed in which this has all taken place. God is good and we continue to trust Him. I’m also extremely thankful that the night before this all happened Isaiah began sleeping through the night and has done so since then. He also moved to a 4-hour feeding schedule, which has been a great help with getting to Becca’s appointments. We’re thankful for the many people who have been so kind to us. We’re thankful for the many people who are praying for our little girl. We’re thankful for the church we’ve just started attending and for their kindness to us.
There is much more I could say, but time does not permit me to. Thank you for all your prayers for our family. God has given us His grace and peace during this time and we praise Him for all He is doing. We praise Him that He revealed the tumor early before major damage took place. We have a great and sovereign God and we know that He will do His best for us.